Maybe good news; I went to see my main top consultant on 10th May, they already moved the appointment once, but my surgeon was not available 蘿, I saw the registrar (1st assistant ) he knew nothing about my history only general medical facts, the cancer has NOT grown and may have reduced (but they can't be sure) , so he doesn't think that surgery is super urgent anymore and so now there is an injection that I can have every two weeks, it's an immune suppressant directly into my stomach, it may put me into remission OR make the cancer worse, then the surgery would be urgent, but I feel that I have to try these injections directly into the stomach for up to 6 months because they may fix the problem, apparently this was not an option earlier, if not then they will remove everything in my bowel and colon urgently. The surgeon does not want to give advice, he says it is my responsibility and decision
Now I am waiting for the Leicester royal IBD nurses to do a blood test before they can start treatement, which apparently is urgent, they told me they are having meetings, but I also know they have a lot of Red days, toil days, personal days, sabbaticals, extended holidays, sick pay (above legal minimum),extra sick days (on top of real ones) maternity, paternity, compassionate days, paid while at the dentist etc,early retirement etc.
I know one nurse that recently had 6 months off because her father died, it must be nice to be able to do that