Cervical Dystonia post opp

I  have just got back from Plymouth after my post opp 6 week follow-up, I  thought everything went OK, my tests results showed a big improvement on movement, now 38 degrees left, 34 degrees right, I'm very pleased, surgeon, Dr. P said results were excellent, BUT he didn't seem very interested, I  only got a few minutes with him after travelling for a three day round trip, two over night stays and two seven hour trips. Anyway, he;s not there to make friends so I  guess he did his job.

Main damper on the event was that out of the blue, he tells me that there is a 10% chance the nerve connections will grow back, there is nothing I  can do to prevent it, and if they grow back, I  have to hope I  can get a second operation.

I  think it was at the forefront of his mind because as I  was there a lady had been re-admitted for the same reason, I'm told the critical time is six months to a year, so a follow up appointment will be needed in six month.

I  was also told I  would have to do the exercises 4 or 5 times a day forever; I  was not told about this before the operation, I  was told I  would need to exercise or the operation wouldn't be much use, but I  understood that was to build up the muscles, and then I  would be OK'ish.

I  realise I  could be looked on as complaining, maybe I  am but I  waited three years for the operation, they messed it up once, sort of got it right in the end but aborted the operation twice; now show no interest or support in my progress, because I  had to have the check-up I  have to travel from Leicester to Market Harborough, about seven hours each way, and a day hanging around the hospital while the physio's measure the change, so a three day trip, very tiring and expensive (trains and hotels), and the result is an uninterested overpaid neurologist face to face meeting for five minutes and then says come back in six months when it may be re-growing.

On a positive note, the lowly paid, humble physio therapist (Miss Z) was brilliant! she seemed really diligent and was obviously pleased and excited by my test results, she looked like she was going to cry, she is a star, I  wish I  could think her properly, I  got her some chocolates :-)