I got back from Plymouth, Derriford hospital late yesterday, I am tired and grumpy.
I had my de nerve operation to treat my cervical dystonia on August 11th 2011, the results were OK but not perfect, at the time the surgeon indicated he may need to have another go, apparently the nerves sometimes grow back on there own, although I honestly was not told about that before the operation.
As I understand it, the cost is very high and my GP has to sanction it, so the surgeon gains, even if he messes up, he gets big bucks, and may have to repeat the operation, anyway, the re-grown is between 6>12 months so its 6 months since the operation and the surgeon insisted on seeing me, for me, Leicester to Plymouth it is 7 hours to Plymouth, one hotel night, see surgeon, too late for return train, another hotel night, then another 7 hours home, it’s a long gruelling journey, for anyone, but with Dystonia it is epic, what really pissed me off is it costs me around £300 for the trip and I only got 5 minutes with the surgeon, he didn’t even stand up to look at my neck, and see if the nerves are growing back, he just sat in his chair and asked me how I was, I said better but not good, and he just wrote something down at appeared and acted quite uninterested, I feel they want the prestige and mega pay, but don’t really want to spend time with patients, I hoped he would tell me something about my disease, and what I can expect in the future.
I always knew that there was no cure, but now he says they took so long to do the operation that other nerves are now trapped and damaged, so of course that’s why my hands are numb and my back hurts and I can't sleep, but he did not seem to care.
In any event, I don’t understand why he could not have told me nothing on the phone, or seen me on Skype, Yahoo, webcam etc. it was a hideous waste of time and money. All I now know is that he will see me again in August, being the one year anniversary. That will be another waste of time, which I guess he will bill the NHS trust for
No comments:
Post a Comment